Home again at 3pm lets hope that's it. They hammered it with big antibiotics - sorry to get technical! and hope it will now all heal OK - so do we.
Ben's coming down for the weekend so that will be good.
Friday, 27 November 2009
Saturday, 21 November 2009
Round and round we go!
Roger was admitted to hospital again on Friday, suffering from a pelvic infection.
They are currently growing a "spec" to see what they are dealing with. Hopefully we will get the results this Monday and then they will know with which antibiotic to tackle "the beast."
Visited Roger this afternoon and he was despondent. Never seen him this low.
It's a good job Rob came with me to help keep up morale. Dark days indeed!
What more can I say!
They are currently growing a "spec" to see what they are dealing with. Hopefully we will get the results this Monday and then they will know with which antibiotic to tackle "the beast."
Visited Roger this afternoon and he was despondent. Never seen him this low.
It's a good job Rob came with me to help keep up morale. Dark days indeed!
What more can I say!
Wednesday, 18 November 2009
the Dobby Days
Been a few days of consolidation, feeling a little better each day, till today! now have yet another urine infection!! if it's out there I'll catch it!!
Still got Dobby the House Elf looking out at me from the mirror!! god he's ugly!! When he leaves it will be another corner turned.
Still got Dobby the House Elf looking out at me from the mirror!! god he's ugly!! When he leaves it will be another corner turned.
Saturday, 14 November 2009
Friday 13th!
I went up to Victoria Ward about 2.30 am, X-Ray on route and was booked for a scan to check my lungs. I languished there for the whole of Wednesday and eventually got scanned Thursday morning but the results were not available till 4:00 pm FRIDAY - ALL CLEAR!!! both X-Ray and scan - it must have been a rogue clot that cleared itself. We were out of there by 5:00 pm and home, we hope for good - Friday 13th is normally a good day for us.
Wednesday, 11 November 2009
Stop Press
The homecoming turned out to last approx 30 hours. Roger developed breathing problems last night and it was suspected that he has blood clots on his lungs. He was rushed in by ambulance to A & E and spent from about 10.00 until 2.15 am waiting on a trolley. Eventually seen by a Doctor from the ward (not an A & E doctor) and admitted for tests and yet another scan!!
His condition suddenly improved and the doctor said that sometimes the clots just disperse.
I left knowing he was in good hands.
I came home in the early hours. It was quite misty and just coming in to Sonning Common, out of the mist appeared a magnificent stag with antlers.........amazing what's about at that time in the morning!
Finally got to bed at 2.45am.
He was looking much better when I saw him this afternoon, but the scan won't be until tomorrow.
We wait, and hope, and see what happens!
Suzanne
His condition suddenly improved and the doctor said that sometimes the clots just disperse.
I left knowing he was in good hands.
I came home in the early hours. It was quite misty and just coming in to Sonning Common, out of the mist appeared a magnificent stag with antlers.........amazing what's about at that time in the morning!
Finally got to bed at 2.45am.
He was looking much better when I saw him this afternoon, but the scan won't be until tomorrow.
We wait, and hope, and see what happens!
Suzanne
Tuesday, 10 November 2009
The Home Coming
I'm home - Monday Evening - Zannie you are a very good writer - thankyou for covering the blog in my absence. You have a hidden talent.
........................................................................
Well! wow! that was some mangle! I tried to keep a diary of sorts but there was no structure of time, it was more of a continuous spiral, also, most of the time I was in 'cloud cuckoo' land. Although I was in for 3 weeks it felt like 3 days - not quite sure what that implies.
Tuesday 20th Oct - went down for the opp - and have vague memories of surfacing in recovery and being looked after by a nurse who lives in Sonning Common. Back on the ward on Wednesday. Had epidural Morphine - drifting in and out of reality! was at a community meeting in Vamos, chaired (very well I might add) by one of the sisters!!! I also spent time in Chiltern Edge (local school) Youth Wing?!?!
By Thursday 23rd I knew I was in trouble with an infection - my mind was all over the place - why would anyone take something that would create this confusion and anxiety on purpose???
Woke up in recovery - again! and eventually back to the ward - lots of travel!? Oxford on one occasion and Vamos a couple of times. Days blend into days.
Tuesday 26th woke in the early hours with a feeling of utter, utter despair! It was like being the subject of 'The Truman Show' it was all a con, but I knew no one would believe me. It was all going on around me - (normal ward activity). This was the most frightening mental torture I have ever experienced! The confusion slowly lifted as the morning progressed.
On Thursday 29th "the big trip" was back and I was on THE USS ENTERPRISE! not quite as daft as it sounds as all nurses wear different colour uniforms dependant on rank. I regained reality quicker that day though, and managed to shower and shave (alright John---Leave it!!---Suz).
Saturday 7th first day I felt human and Sunday better still! I can go home Monday - HURRAH!!
It's funny, everyone has been absolutely brilliant! Professionalism, care and love given by staff at every level by the spadeful: and yet you can't wait to escape!
I can't even scratch the surface of the admiration I have for the RBH staff, at all levels - they were Saints and Angels and I don't think I'm being over dramatic to say I owe them my life - THANK YOU!
........................................................................
N.B. Although they said it was me who came home, they lied!! When I look in the mirror it's Dobbie the House Elf!! When he goes I'll be ready to receive visitors - till then, please keep leaving comments. Roger
........................................................................
Well! wow! that was some mangle! I tried to keep a diary of sorts but there was no structure of time, it was more of a continuous spiral, also, most of the time I was in 'cloud cuckoo' land. Although I was in for 3 weeks it felt like 3 days - not quite sure what that implies.
Tuesday 20th Oct - went down for the opp - and have vague memories of surfacing in recovery and being looked after by a nurse who lives in Sonning Common. Back on the ward on Wednesday. Had epidural Morphine - drifting in and out of reality! was at a community meeting in Vamos, chaired (very well I might add) by one of the sisters!!! I also spent time in Chiltern Edge (local school) Youth Wing?!?!
By Thursday 23rd I knew I was in trouble with an infection - my mind was all over the place - why would anyone take something that would create this confusion and anxiety on purpose???
Woke up in recovery - again! and eventually back to the ward - lots of travel!? Oxford on one occasion and Vamos a couple of times. Days blend into days.
Tuesday 26th woke in the early hours with a feeling of utter, utter despair! It was like being the subject of 'The Truman Show' it was all a con, but I knew no one would believe me. It was all going on around me - (normal ward activity). This was the most frightening mental torture I have ever experienced! The confusion slowly lifted as the morning progressed.
On Thursday 29th "the big trip" was back and I was on THE USS ENTERPRISE! not quite as daft as it sounds as all nurses wear different colour uniforms dependant on rank. I regained reality quicker that day though, and managed to shower and shave (alright John---Leave it!!---Suz).
Saturday 7th first day I felt human and Sunday better still! I can go home Monday - HURRAH!!
It's funny, everyone has been absolutely brilliant! Professionalism, care and love given by staff at every level by the spadeful: and yet you can't wait to escape!
I can't even scratch the surface of the admiration I have for the RBH staff, at all levels - they were Saints and Angels and I don't think I'm being over dramatic to say I owe them my life - THANK YOU!
........................................................................
N.B. Although they said it was me who came home, they lied!! When I look in the mirror it's Dobbie the House Elf!! When he goes I'll be ready to receive visitors - till then, please keep leaving comments. Roger
Friday, 6 November 2009
Cautiously Optimistic!
I hardly dare voice this, lest he starts going backwards again, but I think we've "turned the corner" and that Rog is really on the way to recovery. On Wednesday afternoon he was very much improved, a better colour and moving around much more easily. That night he was sick again, and he told the consultant he couldn't hack it anymore. He sunk right down and hit rock bottom. By the time I heard about this (the following afternoon) he was, however, on the way up again.
All the tubes, and all the stents and drains have been removed now, and he is forcing himself to eat and keep it down, which he managed to do last night, and slept longer than normal. I've been taking him in some good bacteria in the form of Actimel for the last couple of days. It can only be good for him.
Anyway! The oedema has gone (I like to think my massages were something to do with that) and the bowel has started working again.
Today, Friday he was having a good afternoon and they had dressed him in pyjamas instead of the usual hospital gown, so he looked the business!
Chatting with Mr. Shah today, he told us that he'd removed all the lymph nodes (30) in R's stomach as a precaution. He told me that he thought Roger was "a lovely man," so say all of us!
Oh! and the other big thing is his temperature is down and seems to be staying down, which means they've defeated the dreaded infection. Of course he now needs fattening up, as his bones are poking through what little flesh is left, but lots of TLC will soon put that right. He still needs to get rid of those hiccups though!
I took him in a photo of the first snows of the Winter on the mountains in Crete (happened on Monday) so he can focus on that.
All in all I'm feeling rather happy tonight.
Please, please let it last!!!
Suzanne
All the tubes, and all the stents and drains have been removed now, and he is forcing himself to eat and keep it down, which he managed to do last night, and slept longer than normal. I've been taking him in some good bacteria in the form of Actimel for the last couple of days. It can only be good for him.
Anyway! The oedema has gone (I like to think my massages were something to do with that) and the bowel has started working again.
Today, Friday he was having a good afternoon and they had dressed him in pyjamas instead of the usual hospital gown, so he looked the business!
Chatting with Mr. Shah today, he told us that he'd removed all the lymph nodes (30) in R's stomach as a precaution. He told me that he thought Roger was "a lovely man," so say all of us!
Oh! and the other big thing is his temperature is down and seems to be staying down, which means they've defeated the dreaded infection. Of course he now needs fattening up, as his bones are poking through what little flesh is left, but lots of TLC will soon put that right. He still needs to get rid of those hiccups though!
I took him in a photo of the first snows of the Winter on the mountains in Crete (happened on Monday) so he can focus on that.
All in all I'm feeling rather happy tonight.
Please, please let it last!!!
Suzanne
Monday, 2 November 2009
Two Weeks Tomorrow
Two weeks tomorrow since Roger had his first operation. His body has suffered such an assault that it just seized up and refused to work. Whatever he tried to eat (and he really hasn't got any appetite) he threw up. His bowel stopped processing anything and his legs and feet swelled up to an enormous size.
I have been giving him foot and leg massages most days in a bid to get rid of the oedema, which seems to be improving slowly, plus he enjoys it.
The consultant was concerned about Roger's protein levels, because he was just too feeble to eat enough to make a difference, so it was decided to insert a tube and drip feed him bottles of nutrients. This started on Saturday 31st. and was a good move, as he started to pick up a bit and slept that night from 9.00pm until 7.00am, which I have to say is more than I am managing at the moment!
By Sunday he'd managed two bottles of liquid food, and felt better, although he is still having hallucinations and they think it might be the drug they are giving him to try and cure the hiccups, so are looking into changing it for something else (doesn't work anyway!) he's still hiccupping for England! His bowel has sprung into action again, or maybe not exactly sprung, more of a saunter really.
Today I went in to see him and really expected him to have "turned the corner" and he did seem a little brighter, it's true, but he said that there was some concern over the actual wound. Whilst I was still with him a doctor came and looked and confirmed that he had an infection in the wound, which, low and behold is Pseudomonas Aeruginosa. This is what he caught last year when he went in to have a flexible cystoscopy (just an out patient's checkup and he came away with it) and ended up going into hospital 2 days later by ambulance, as an emergency.
I'm not quite sure what they plan to do about it, as I left before the consultant had done his evening ward round.
I am very frightened!!! See what tomorrow brings!
Suzanne
I have been giving him foot and leg massages most days in a bid to get rid of the oedema, which seems to be improving slowly, plus he enjoys it.
The consultant was concerned about Roger's protein levels, because he was just too feeble to eat enough to make a difference, so it was decided to insert a tube and drip feed him bottles of nutrients. This started on Saturday 31st. and was a good move, as he started to pick up a bit and slept that night from 9.00pm until 7.00am, which I have to say is more than I am managing at the moment!
By Sunday he'd managed two bottles of liquid food, and felt better, although he is still having hallucinations and they think it might be the drug they are giving him to try and cure the hiccups, so are looking into changing it for something else (doesn't work anyway!) he's still hiccupping for England! His bowel has sprung into action again, or maybe not exactly sprung, more of a saunter really.
Today I went in to see him and really expected him to have "turned the corner" and he did seem a little brighter, it's true, but he said that there was some concern over the actual wound. Whilst I was still with him a doctor came and looked and confirmed that he had an infection in the wound, which, low and behold is Pseudomonas Aeruginosa. This is what he caught last year when he went in to have a flexible cystoscopy (just an out patient's checkup and he came away with it) and ended up going into hospital 2 days later by ambulance, as an emergency.
I'm not quite sure what they plan to do about it, as I left before the consultant had done his evening ward round.
I am very frightened!!! See what tomorrow brings!
Suzanne
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